Lives We Cannot Live

Image of a woman on her sofa.

M.E. is a doubly invisible illness: not only are symptoms hard to see but the disease attracts little understanding from the public or the medical profession. This leads to people with M.E. experiencing prejudice and disbelief, making them feel stigmatised and isolated.  

This photographic project of people with ME, presented by one of the UK’s leading ME charities, aims to bring identity and visibility to the community, demonstrating the range of people who suffer with the disease and the often devastating impact it has on their lives. 

Photographer Jeremy Jeffs himself suffers with ME, and sharing the lived experience of his sitters has enabled him to build relationships and gain access that may not be possible for other photographers.  

He been researching and shooting for nearly 3 years and so far the series comprises images of more than 20 people. Some have M.E. so severely that they are confined to bed, some who are able to work part time, and many others who struggle to simply keep up with a basic existence.  

Jeremy is a documentary film maker and photographer, with more than 40 broadcast films to his credit. His work has been shown at the V&A, the National Film Theatre, and at many festivals around the world.